17 month old with very rare disease

Carter is a 17 month old baby boy who was completely normal up until December when his life changed forever. Carter was airlifted to parkview hospital becasue he was having a siezure that his local hospital was unable to stop. upon arrival at parkview they did so many test and gave him so much medicine and after 21 1/2 hours they were able to stop kit by placing him in medically induced coma. from there on carter when through so many test, a few surgeries, and a blood transfusion. he lost his ablility to sit, move or eat by mouth the most he can do is move is arms an legs alil. then in april after being hospitalized for almost 3 months we finally got an answer but it is not one that we had been hoping for. carter was diagnosed with alpers disease a rare progressive neurological disease that will eventually take his life. carter is so strong and is fighting hard but i worry that soon his body is going to get tired. we would like to make his life as special as we can while we can. the dr said that he has maybe a couple of months to maybe a couple of a years but he probally wont live past three. carter and his family are metally,emotionally,physically, and financially exousted. we are asking that if anyone can help us please help us.we just dont know what to do or were to start if you have any questions you may contact me at spike_sassy2005@yahoo.com
thank you,

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carter's proud mother says ... on Thursday, Jun 10 at 9:20 PM

i also forgot to mention that carter is now blind because of everything that is going on they are not sure it is because of brain damage that he has from the prolonged siezure or if it becuase the disease has progressed.

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